Tuesday, April 17, 2007

I started this blog a while ago. Tyler was going through MANY genetic testing and so I wanted something to just put my feelings out there and give me some therapy. Well...now we are going through some rough things with my oldest, Jacob. I think I am going to start this blog for him and his journey instead of Tyler's since we are at a pause with Tyler and his testing. Here is a little bit about my big guy Jacob...

Jacob is 4 he will be 5 in august. When he was born he was always moving around. He crawled early, and walked early! We just thought that he was going to be early at everything. I am fluent in sign language and so I always wanted my kids to know and love sign language like me. When Jake was a year old I started teaching him sign language. He was getting pretty good and knew a lot of signs and used that for everything. When he was around 2 1/2 I noticed that he wasnt talking and that it seemed pretty weird. He was my first so I just figured that he would catch up soon. I started to blame myself because I thought it was because I taught him sign language and had him use that instead of his words. He was also very active. I hated taking him to other peoples houses because he was always running around and getting into all of their stuff. He would turn on and off lights and shut all the doors...it was just emberassing. Again, I knew that was a little strange, but I never thought anything of it. We lived in Texas at the time and 2 months after Jacob turned 3 we moved back to Arizona. My sister was visiting and telling me that Jacob really doesnt have good speech and that we should get him tested to see if he can go to the preschool program that the public school has. So we got him tested and he passed with flying colors! So we got him in and he started to prgress amazingly!!! IN a year he went from NO words to 2 word sentances. We were so happy that he was talking and we were starting to understand him more. Lets fastforward to December '06. He is still very hyper and his speech is starting to get so much better. But now he has weird behaviors...he is very viloent to himself and to other people. He wont look into your eyes when you talk to him and he wanders off and will dart in front of cars without even knowing what he is doing. I go in to a meeting with his teacher and she tells me that she is concerned with Jacob and his behaviors. She told me that he is the worst kid that she has seen in the hyperness and not being able to focus on anything. So she said it would be wise to take him into his ped and see what he thought. So we did and immidiatly he told us that he would like us to go to a developmental pediatrition and see what they think. So Feb 2nd comes and we go to our appt. Within 30 min of being there she already knew that he had autism. I kinda prepared myself for that going in because I was 90% sure thats what he had. But I thought he had a form called Aspergers. I didnt know that he was worse than I thought. She diagnosed him with Severe ADHD, High Functioning Moderate Autism, Developmental delay, and a speech delay. I was so overwhelmed when she told me that I just broke down! I was a mess, and I still am. We are still getting used to the autism diagnosis and every day I find something different that he does that makes me say...hmm yep I see the autism in him. I am going to start this blog to put down my thoughts and feelings of the day into writing because it does help to get it all out. I have such a hard time with this and I am so excited to be able to have some kind of outlet to get it all out.

2 comments:

Haylee Gabrielle said...

Brit - hey! I just read this to get a better idea. Hmm I think at least you could say you understand him a bit better now that he was diagnosed.

My best friend's son (whose name is Tyler, oddly!) - was diagnosed also, w/severe autism. I think it's great he's in a playgroup, that will help tremendously. Usually children diagnosed w/autism are SUPER smart in one certain topic/subject/thing. I'm sure you'll find that out soon if you haven't already. ;)

He's such a special child, I know you already know that. God put Jake into your life for a reason. I know it's probably overbearing at times, and sometimes it feels like you will never understand. Not that I know personally, but I feel that from my friend.

Give him big hugs - you guys are going to get through SO much together.

Love ya - Mel

Ginger John said...

Sounds like you and your family are going thru alot. Hang in there. Being a mom is the most important thing we can ever do :) Sounds like you are a great mom. Abby Neilson's little guy was diagnosed with Autism this past year. What a hard thing. I am so glad you found my blog. It nice to be able to find long lost friends! Good luck with your little man.