I had a little meeting with some of Jakes therapists. And we decided that it would be the best to try him on a little sensory "diet" We are just going to try it out for a few weeks and see what happends. For those of you who are not familiar with what sensory issues are...here is a little bit about it. This is taken from a website I go to quite a bit. http://www.kid-power.org/sid.html
Sensory Integration Dysfunction is the inability of the brain to correctly process information brought in by the senses. Sensory Integration Dysfunction (SID/DSI) or sensory processing deficits can come in many different forms. No two children will be affected in the same ways. SID/DSI was first noticed in children with autism or who had autistic traits but is also seen in children with other disabilities such as cerebral palsy or ADD/ADHD
Here are also a few "signs" that told us that Jacob had this and it was something to look into.
-- Loves to spin, swing and jump--this will seem to calm them down after several minutes
-- Oversensitivity to sounds--will frequently cover ears. Or undersensivity.
-- May have an exceptionally high pain tolerance
-- Unusually high or low activity level
-- Resists new situations
-- Problems with muscle tone, coordination, motor planning
-- Can be very impulsive or distractible.
-- Persistently walks on toes to avoid sensory input from the bottom of the feet.
Now a lot of this stuff is similar to autism and ADHD. I found out that sometimes kids have sensory disorders and they get misdiagnosed as ADHD. So we are hoping that is Jacobs case. So in this diet you are supposed to do some sensory activity every half hour all day. So I figured I had to redo our schedule so that we could fit it in. Now they are going to work with him at therapy and thats where he is at the majority of the day. So when he is home, all we are goign to do is sensory activities. Here is our schedule
5:20am-8am
Wake up
Rub feet, hands, and back to wake up
Listen to calming CD in car when taking daddy to work
play on sit-n-spin
play with playdoh
eat crunchy breakfast with fruit
brush teeth with vibrating toothbrush
let him pick out what to wear for the day
8:30-3 Therapy
3-6pm
Playground for 30 min
Push Tyler in stroller for 30 min
mini tramp. excersizes
massage feet
wheelbarrow walk
oral work
6-8 pm
Help with cooking dinner
help set table
crunch/chewy food to snack on
family time-coloring or playdoh
Warm bath with bubbles and aroma therapy
massage for bedtime
Ok, so this is a lot I will post again tomorrow or in the near future why we have to do the things we are doing. A lot of this just looks like playing and having fun. But its basically therapy for him and I can not believe how much it helps. We started it tonight after he got home from respite and we did everything right on this schedule and he was out by 7. This NEVER happends. He had his bath and I was rubbing his back and he fell asleep while I was massaging him. I really hope this is going to be a start of something great!! Everyone pray for us and pray that this works for him. I have been so overwhelmed at all this info and what to do but I really feel like im doing something good for him.
6 comments:
I think this will be so good for him. I really think this is going to work!! We will definatly be praying for you. Let us know how things are going-we will expect to see a whole new jake at thanksgiving. Love ya and good luck
WOw, that's so cool. I hope it continues to go well. I can't believe how much work you have to do. Poor girl! You're a good mom.
I can't believe how much you have to do with Jake. I'm amazed at the work you and Tom do. You're great at it and I'm excited that your mom will finally have to buy sugar free candy!
Oh girl I will pray for you guys!! You have inspired me to start a schedule, somthing I have been needing to do for a LONG time! You are so good & organized...you will have to tell us more tomorrow!
HI! I am so glad you found me! You are truly amazing and inspiring! I hope I can be as good a mom as you are!
Glad to hear from you, and yes, I married the best guy, Michael Pew!! (HE was kind of silly growing up, but I love him to pieces:) )
Okay Brit, I saw this post, now where is a more recent one?? Hope all is well with you!
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